„Ella avea 10 ani. Şi sindrom Dravet!
Ella a plecat ieri în altă lume unde Dravet şi convulsiile nu există!
Astea sunt momentele în care cred că mai e ceva şi după. O lume liniştită şi senină.
La fiecare copil cu Dravet pierdut, îmi stă inima de frică. O frică surdă care îmi îngheaţă sângele în vene.
O frică cu care am învăţat să trăiesc.
E nedrept
E inuman şi nedrept să trăim aşa dar nu avem de ales.
Azi îmi strâng puiul meu cu Dravet în braţe, mai tare ca ieri. Pentru că Ella mi-a amintit ce înseamnă Dravet… nu că aş fi uitat, doar mi-am permis luxul să nu mă mai gândesc la asta… atât de des!
Zbor lin, fluture mov!”, a scris Adele Chirică pe reţeaua de socializare Facebook.
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